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Dear Friends, Chronic Lyme disease has been banished as a disease! No conventional or alternative treatments are recommended! Doctors cannot make a clinical diagnosis anymore!
This is a pivotal moment in the history of Lyme disease. It is time for patients to fight back! This protest is part of a national agenda to get back control of our treatment and our lives.
Your participation is critical! Patients are already being denied coverage. Doctors are backing off treating. There is no room for clinical experience with the new guidelines.
This insidious disease is devastating the lives of children, families and our communities, while much of the medical establishment continues to deny the severity of this public health crisis.
The Infectious Disease Society of America has released a new set of reckless guidelines that will IMMEDIATELY impact all of us.
Ruled by a few: 14 IDSA committee members created these new guidelines 14 IDSA committee members and the IDSA board were the only ones to vote & approve guidelines Patients and treating physicians were denied input into guidelines. This small group holds our health and lives in their hands.
Guidelines impact:
- Diagnosis is no longer clinical but rather only by CDC positive surveillance blood test or EM rash,
- Will miss 50% of Lyme cases leading to the potential for severe debilitating chronic disease.
- Insurance companies will be empowered to deny coverage.
- State medical boards have strong basis to prosecute our doctors.
- School districts may utilize guidelines to not address special needs of students with chronic Lyme.
- Child protective Agencies may file inappropriate charges in custody cases.
We need to hold the IDSA responsible and accountable and let the world know what they are doing.
New York Medical College/Westchester Medical Center is home to three of the IDSA committee members we will not quietly tolerate them harboring this group.
What you need to do! Show up ~ Numbers count! Bring family and friends. If to far/ill to attend see website (Lymenews.org) to help with other protest efforts. Print out and distribute attached flyers at your local doctor’s offices, grocery stores, libraries etc. Inform and update media
See you there.
Lyme Rights www.Lymenews.org
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